Health+Research

The [|Canadian Institutes of Health Research] has published a document titled [|CIHR Best Practices for Protecting Privacy in Health Research]. This document defines 10 elements that should be considered in the design, conduct and evaluation of health research to address privacy and confidentiality concerns. These elements are:


 * **[|Element #1]** - Determining the research objectives and justifying the data needed to fulfill these objectives
 * **[|Element #2]** - Limiting the collection of personal data
 * **[|Element #3]** - Determining if consent from individuals is required
 * **[|Element #4]** - Managing and documenting consent
 * **[|Element #5]** - Informing prospective research participants about the research
 * **[|Element #6]** - Recruiting prospective research participants
 * **[|Element #7]** - Safeguarding personal data
 * **[|Element #8]** - Controlling access and disclosure of personal data
 * **[|Element #9]** - Setting reasonable limits on retention of personal data
 * **[|Element #10]**- Ensuring accountability and transparency in the management of personal data

This is a comprehensive guide (169 pages) for anyone involved in health research who is interested in applying best practices for protecting the privacy rights of individuals.